It really is true when they say you don't know what you've got until it's gone. The everyday things that I used to take for granted, like waking up in the mornings feeling ready for the day, answering my phone when it rings, being able to decide what to have to eat, what to watch … Continue reading Before the rain.
Covid 19: Lockdown And Chronic Illness
I wanted to write about the impact of the Covid 19 lockdown on me personally, because it would seem from friends points of view or from reading various social media comments that people might think it hasn't made much of a difference to those that would normally be housebound alot anyway. At least from my … Continue reading Covid 19: Lockdown And Chronic Illness
Invisible illness. Seeing is believing.
They say seeing is believing. So how do I show someone that I have an invisible illness? How do I explain it in a believable way? It's crazy that something so very real, incredibly painful and hugely debilitating to me can be disbelieved by others simply because they can't see it. I believe it because … Continue reading Invisible illness. Seeing is believing.
Mental Health: The struggles after speaking out.
There's been so much media attention surrounding the importance of speaking out about our mental health difficulties and it's a common misconception that once you do speak out you can get the help that you so desperately need. Sadly from my experience it's been incredibly difficult to get that help and surprisingly easy to slip … Continue reading Mental Health: The struggles after speaking out.
How I reduce my decision fatigue.
Have you ever just sat staring into space pondering over a simple decision and then before you know it, 15 minutes has passed and you've forgotten what you were doing or given up and moved onto something else? That's what I like to refer to as my decision fatigue. Life with both a physical and … Continue reading How I reduce my decision fatigue.
Living alone with a chronic illness is really hard.
Since being diagnosed with Guillain-Barre Syndrome my life has been challenging to say the least. Before my illness I was working full time and living alone. My house was mortgaged but I was managing pretty well financially. I had spare cash every month to spend on whatever I wanted and I enjoyed having my own … Continue reading Living alone with a chronic illness is really hard.
Guillain-Barre Syndrome – The warning signs.
I thought this would be a good topic to write about because when I was first suffering with symptoms of Guillain-Barre Syndrome I did what most other desperate people in pain do, I googled it. Since the first symptom I noticed was severe lower back pain that's what I focused on. Lots of conditions came … Continue reading Guillain-Barre Syndrome – The warning signs.
My go to products for life after Guillain-Barre Syndrome.
When I was initially diagnosed with Guillain-Barre Syndrome I was in excruciating pain and being given doses of Morphine throughout the day and night in an attempt to make the pain bearable. I also couldn't walk on my own and had lost normal use of my arms and facial muscles. Although I was extremely happy … Continue reading My go to products for life after Guillain-Barre Syndrome.
10 reasons why owning a pet can help with depression.
Living with a mental illness such as depression is really tough. It can be very lonely at times. Friends don't keep in touch as often because I'm not out socialising. There's days when my only contact with another human being has been via text message. Days can seem very tedious, especially because I also suffer … Continue reading 10 reasons why owning a pet can help with depression.
10 things I wish I knew about life after Guillain-Barre Syndrome.
When I was diagnosed with Guillain-Barre Syndrome back in 2016 I'd never even heard of it. I asked the doctor to provide me with some information I could read and I was promptly provided with a print out from the internet about the condition. Paralysis, difficulty breathing, loss of bladder function, severe pain, possible death....it … Continue reading 10 things I wish I knew about life after Guillain-Barre Syndrome.
Spoon Theory Explained.
Since my Guillain-Barre Syndrome diagnosis, one of the the things I've noticed is that people often don't consider me to be 'sick' or disabled if visually there is nothing wrong with me. Huge assumptions are made based on how I look. I don't have a wheelchair or walking aid so it's assumed I don't have … Continue reading Spoon Theory Explained.