I wanted to write about the impact of the Covid 19 lockdown on me personally, because it would seem from friends points of view or from reading various social media comments that people might think it hasn't made much of a difference to those that would normally be housebound alot anyway. At least from my … Continue reading Covid 19: Lockdown And Chronic Illness
They say seeing is believing. So how do I show someone that I have an invisible illness? How do I explain it in a believable way? It's crazy that something so very real, incredibly painful and hugely debilitating to me can be disbelieved by others simply because they can't see it. I believe it because … Continue reading Invisible illness. Seeing is believing.
There's been so much media attention surrounding the importance of speaking out about our mental health difficulties and it's a common misconception that once you do speak out you can get the help that you so desperately need. Sadly from my experience it's been incredibly difficult to get that help and surprisingly easy to slip … Continue reading Mental Health: The struggles after speaking out.
Since being diagnosed with Guillain-Barre Syndrome my life has been challenging to say the least. Before my illness I was working full time and living alone. My house was mortgaged but I was managing pretty well financially. I had spare cash every month to spend on whatever I wanted and I enjoyed having my own … Continue reading Living alone with a chronic illness is really hard.
When I was initially diagnosed with Guillain-Barre Syndrome I was in excruciating pain and being given doses of Morphine throughout the day and night in an attempt to make the pain bearable. I also couldn't walk on my own and had lost normal use of my arms and facial muscles. Although I was extremely happy … Continue reading My go to products for life after Guillain-Barre Syndrome.
When I was diagnosed with Guillain-Barre Syndrome back in 2016 I'd never even heard of it. I asked the doctor to provide me with some information I could read and I was promptly provided with a print out from the internet about the condition. Paralysis, difficulty breathing, loss of bladder function, severe pain, possible death....it … Continue reading 10 things I wish I knew about life after Guillain-Barre Syndrome.