When I was fit and healthy I always assumed that people who were chronically ill or disabled would get help with the financial burden that comes with it. Now that I myself am both chronically ill and disabled, I've realised that financial help only goes so far. For me there are lots of hidden costs … Continue reading Chronic illness can be expensive.
Tag: daily life
Modern shopping is a self serve nightmare.
The rise of internet shopping and self serve technology has made shopping far less enjoyable for me over the last few years. I appreciate that some people may find it helpful or actually prefer it, but it seems increasingly likely that it'll become unavoidable pretty soon and for me, it'll put an end to my … Continue reading Modern shopping is a self serve nightmare.
Great Expectations.
When I first became ill, one of the biggest hurdles for me mentally was the loss of control over the things that existed in my life. Things that once were routine were suddenly uncertain. Things like work, finances and living independently were all taken for granted up to that point. It took years for me … Continue reading Great Expectations.
Invisible illness. Seeing is believing.
They say seeing is believing. So how do I show someone that I have an invisible illness? How do I explain it in a believable way? It's crazy that something so very real, incredibly painful and hugely debilitating to me can be disbelieved by others simply because they can't see it. I believe it because … Continue reading Invisible illness. Seeing is believing.
Living alone with a chronic illness is really hard.
Since being diagnosed with Guillain-Barre Syndrome my life has been challenging to say the least. Before my illness I was working full time and living alone. My house was mortgaged but I was managing pretty well financially. I had spare cash every month to spend on whatever I wanted and I enjoyed having my own … Continue reading Living alone with a chronic illness is really hard.